MarilynParker

By MarilynParker

Soaking Saturday

Didn't take many photos today as I was busy cleaning up this morning and then it was chucking down when I went to the hospital. I drove today and parked on the little car park which is not NHS.
Due to a poor sleep last night I had to have an hour in the shawl before my evening meal.
I cleaned up the mess in the ceiling fall bedroom and realised that if the last few lengths fall I may not be able to get into the room. I could leave the door open which would solve that problem but do I want to risk more mess to extend out of the room which could happen?
Yes, there's my usual trait - "worst case scenario" - why not leave the door open in anticipation of there being hardly any mess or none?! A team of doctors came to see Terry today, another senior one that he's not seen before. He told Terry that according to yesterday's CT scan, the pleural effusion is still there, he has 4 pockets of liquid which may or may not be holding infection and he has a chest infection which is plain to see on the scan.
We find this incredible - I have been with Terry for 28 years and he has never had a chest infection in all that time. He says he can't remember the last time he had one but it's definitely more than 30 years. His oxygen sats are reading 98% and he has no oxygen on. He has a cough but it is the one he has had all along with this illness and it's not productive. He has not got a raised temperature and is not breathless. He has been in hospital for 4 and a half weeks and in most of that time has been on either intravenous antibiotics or oral ones and never less than 2 types at once. How has he (still) got a chest infection? Or is it not that - is it the pancreas firing off inflammatory signals? Anyway, this surgeon changed one of the antibiotics and Terry said at least the new one was easier to swallow but then later today he said the antibiotic had changed again to a big dobber type and two of them at once!
I hope they know what they are doing - when he started the antibiotics last week he was told they were for the pancreas as they thought infection had managed to get in the pancreas and they told him he would need to be on these antibiotics at least a month.
I feel there are too many cooks and his care is disjointed - too many changes before things are given time to work. He is getting conflicting information as well - the Registrar told him the other day his effusion was clearing up - different story today. On Thursday he was told his results were improving but now he is told they are just staying stable and only because of the antibiotics.
Last night he asked for oramorph and gaviscon at bedtime - got neither. He rang me tonight and was waiting for oramorph again but it did not appear that it would arrive.
The nurse on the day shift was very good however and she even mixed his milk shake for him and ordered him some strawberry ones since he told her the chocolate ones are disgusting!
He is still struggling to eat and the advice for pancreatitis is small amounts 6-8 times a day - this is impossible in hospital!
The surgeon today asked why he had not had his gall bladder removed after the initial cholangitis episode he had 13 years ago (he is not the first to ask this) - Terry said that the surgeon at the time said he thought it would be as well not to remove it as there were no more stones in it at the time and it was working all right. However, apparently it is recommended that the gall bladder is always removed after a bout of cholangitis as it will happen again if not. He said this is why Terry is in this mess now.
Great.
A stent that should have been removed after 3 months and was never removed and a gall bladder which should have been removed after the cholangitis had cleared up; both 13 years ago. Incompetence. Negligence.
At around 5:15pm I was out in the back garden (briefly) when what a noise! Looked up to see the Red Arrows flying over in two formations. A bit disappointed that I didn't have my phone with me so no chance to take a photo but made up to see them so clearly. I rang Terry to tell him and he'd seen them go over from his hospital bed!  He said everyone had run to the windows to look (it wouldn't be any of the patients I saw as most of them can barely walk let alone run).

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