Wilted

Seems like a fitting description for how I am feeling.

After a problem-free infusion on Thursday, early Friday morning, I developed the most horrendous headache, neck ache, and nausea of my life. After 3 hours of trying to manage at home but being unable to keep anything down, it was another 10 hours in the ER before I was finally admitted to the hospital. When I was able to talk coherently again, I was given the option to go home. The thought of being home overpowered my rationality, as it was another rough night, although not quite as bad as the night before. I am slowly coming out of this hell with a body that feels immensely battered (and the veins to go along with it).

Either this was a meningitis brought on by the IV Ig infusion or just a severe headache. I have had migraines for 27 years and none of those headaches were as bad as this.

Chances are, this will happen again. I have 3 more infusions in the next 10 days. Then one every 2 weeks for 3 months. Maybe I can handle this better knowing what to expect and treating the headache with meds before I become too sick to keep anything down. If the next bout is worse than this, perhaps the treatment is worse than the disease.

While I hate feeling this way, I am most definitely feeling more than a little sorry for myself today.