Theatre and formal diagnosis

It was a hard hard day. I had 3 hours sleep. Alex did not take going to theatre well and it was very traumatic as they put him under. It took ages for hin to wake up which was a good thing as he needed to lie flat for 2 hours!

We had a long long wait for results, and then I just broke down in the meeting with the consultant.

After I went outside to the rooftop and screamed and cried then phoned my parents to sob. This is what Hell is like.

My poor baby. He has so much to face, and it breaks my heart.