Darcy Bussell Rose

In the garden. 

B not feeling so good today and very down as well. We watched a little of the jubilee celebrations but it’s hard to see people just ‘living’ and being normal while we are stuck in this limbo of uncertainty and sadness. Liam visited and B managed a bit of a braver face and sat in the courtyard with us for a while. 

His breathing is worsening ever so slightly every day, and he worries about not being able to breathe at all. It’s so difficult to know what happens, and three weeks since diagnosis and he still haven’t seen a single doctor. The hospice nurse phones once a week and next week I will ask why!