Owen visits

Rafi's friend Owen visited today.He also had a visit from William and Nina's friend James
(as well as us lot of course!)
Rafi has been very tired the last few days due to his muscle relaxant dose being increased. It seems to have had a good effect on his muscles, but it has the effect of making him sleep even more.
He was so sleepy last night that he was close to being sent down for another CT scan to check his shunt was working properly ( just as I was about to go to bed, so I didn't have a very restful night wondering if he was just sleepy or ill) Luckily he was was ok and was wide awake when I came down this morning.
Despite being sleepy Rafi has done some good communication with his blinks and has made some good effort with doing a 'thumbs up'!