Sleeping beauty

By the time I returned from Edinburgh today, C and J were fast asleep!
We had great fun with M and Pop's drone (pressy from daughter in NZ).
The little miss is so excited to be allowed to work it-she shakes with anticipation.

I had an interesting meeting with the CEO of Marie Curie, Dr Jane Collins.
I felt it was important to tell the story of my mother's care at home and highlight the things which were supportive and those that were not.

She was interested in my perspective but more importantly, the discussion helped me to fully understand and appreciate what a truly wonderful thing J and I did to nurse Sadie at home till she died of Dementia. As Dr Collins confirmed, that hardly ever happens.

I told her I will fight for people with Dementia who have the right to die at home if that is their wish. Our infrastructure and practice in this country do not easily support this.
 
Interesting to realise that of the 21 or so patients who die on a GP's list on average in a year, 8 will die of frailty/dementia-more than organ failure (5-6), cancer (5) or sudden, unexpected death (1-2).

The fact that dementia is combined with frailty and is not reported alone, reduces the importanc and significance of this terminal disease.

In my opinion, the situation is not yet good enough.