Fireworks

Today was the switching on of the Vhtisynad lights in Farsley. We very nearly didn't make it as Ben was hyped up, naughty and knackered from an afternoon at his pal Odin's while we went to see Neave's surgeon. I was really looking forward to the appointment and getting a date in for her op. But he wants to see more growth, he had actually scheduled for her to have a stoma next bloody week and thank fook the dietician was there to advise that we can work on her weight by upping her formula instead. Fooking centile charts. It also seems that she will have a stoma next year possibly before and definitely after her op for months not weeks. It seems I've got tit bits of information from well meaning nurses and team members, thrown in some Helen optimism and came up with a very different idea of how things will progress for Neave next year. So today was a bit of a shock.

I was in a shitter of a mood till the fireworks snapped me out of it. Love Farsley for putting on a good show. Not sure Ben loved it. He went from delight and wonder to terror pretty quickly and shut his eyes for some of the display!