photos of life

By Jen16

Blood tests!

This has been nightmare week with appointments every day! Monday we met with Jonah's key worker she is lovely & very supportive she was pleased that he is talking a little more now. Tuesday was his community nurse delivering probes for the sats monitor and checking up on his general health, since the blast of antibiotics he has actually been virus free for over a week! Yesterday we saw the general paediatrician who informed us that she isn't really doing much for Jonah!! Great hey! She thinks his condition is something that hasn't been discovered yet. Fed up of the words "he is very unique!" today was gastro consultant who thinks he may have coeliacs or some sort of allergy/intolerance. So off to have blood tests and a referral to allergy specialist. This picture is him after having blood taken from his finger! Tomorrow I'm back to neurologist its Jemima's epilepsy appointment but he also sees Jonah at the same appointment too. I'm exhausted and totally drained, both yesterday & today's consultants were running over an hour late which just annoys me!

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